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For people on the road to recovery from CFS/ME

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Friday, November 9
View Article  Live Music in S.E London
by AMG on Fri 09 Nov 2007 19:05 GMT

Hi all,
I was an M. E 'fighter' who during my illness (17years) turned to music as a
therapeutic pastime. That pastime has become my new career.

If you live close to Forest Hill/East Dulwich and fancy a couple of hours of
live entertainment provided by yours truly this Saturday evening (Nov 10th)
please read on:

ROCK/POP/SOUL DUO - Guitar & Vocals - with myself & Enrico Pinna (see below)

Classics Incl toons from : Rolling Stones, The Police, Cyndi Lauper, Aretha, George Benson, Tina, Bob Marley, Eric Clapton, Bob Dylan, Stevie Wonder to U2…

Producer, sound engineer and guitarist extraordinaire Enrico Pinna has played with Gianni Morandi, Scott Henderson, Jim Hall, Mike Stern, Steve Washington, Johnny Mars, to name a few. A close friend of Tuck & Patti and Mike Stern, Enrico is now based in London. Aside from his collaboration with Val he currently tours with progessive  rock band ‘Karnakarta’.’

Where:            the newly refurbished - Forest Hill Tavern
Address:         108 Forest Hill Road, EastDulwich SE22 0RS ( 10-15mins walk from Honor Oak Park station)
Time:               9pm - 11pm
Entry:               Free!!! 

Hope to see ya
Val & Rico

Keeping it Live!

www.ryez.co.uk
www.londonjazzduo.com

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Thursday, November 8
View Article  Fulfilment with flexibility
by AMG on Thu 08 Nov 2007 20:39 GMT

As we've started hearing more about different people's enterprises, I thought I might mention my own.   Although I've been back at work for 6 years now since my last major relapse, promotion has always been a difficult issue. I've always been worried about getting to the higher level and then being stuck there, struggling to cope, at times when I have a dip in health/energy.

I tried a temporary promotion for 9 months, which went quite well but didn't feel sustainable.   So instead I get additional fulfilment through a number of projects, which are flexible enough that I can increase or decrease activity in them as I need to (theoretically, anyway!).  These include:

- co-ordinating the wellies network!   Though I have opted out of organising get-togethers, as I was finding that was taking just a bit more commitment than I had to offer.

- I'm in the final year an IT diploma at Birkbeck University of London ... which is fabulous because it's modular and you can take several years over it, so I really can plan my level of commitment quite carefully.

- I have an allotment, which does take a fair bit of physical effort - but I'm taking a strictly no-dig, gradualist approach so it's reasonably ME-friendly.   And thanks to all the mulch, it seems to have coped pretty well with quite a bit of neglect this year.

- And my biggest project is a small-but-thriving web design business - see www.amree.com .  Web design is great because unlike so many jobs it has a nice colourful end product that's out there for the world to see.   It also combines a number of my interests - IT, organisational development (which is my day job) and user-friendly communication.   The other great thing about this is that if ever the s**t really hits the fan again healthwise, a few hours' web design work a week should hopefully save me from having to grapple with the benefits system, as that bit of my brain seems to keep working even when I'm quite ill. 

Anyone else got any ventures to share? Anne-Marie x

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Tuesday, October 30
View Article  Want to have your say about Chronic Fatigue Syndrome / M.E?
by AMG on Tue 30 Oct 2007 22:42 GMT
I have had CFS for 4 years and have worked hard to get better. Now I am improving I wish to pass on information about the strategies that I have used as I found very little available and have been asked to write a book for friends and families of sufferers that will help to explain the condition and suggest ways people can help their loved ones. It is for part of a series of books covering a variety of illnesses including cancer, depression and diabetes and will be on sale in major shops so will hopefully reach a lot of people.

I want to include a wide spectrum of experiences and produce something that is useful to anyone with CFS/ME so I am asking if anyone wants to contribute and have their say.   More information and details of how to contribute are below.

Sincerely,
Elizabeth Turp

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Want to have your say about Chronic Fatigue Syndrome / M.E?

I am doing some research into what the friends and families of people with M.E. can do to help them. This will form part of a book being published by Manchester University Press to be sold in major shops, and has the aim of improving the quality of life of both sufferers and their loved ones. I have the condition myself and am now making a good recovery, and want to pass on the information I have learned.

As you will know, there are not many books available about M.E, and it is difficult to explain to others how it feels. The book will describe the physical, emotional and practical effects, and offer tips on what friends and family can do.  As this is different for everyone I am hoping to gather a range of opinions and ideas so that readers can pick what fits their situation best.

If you would like to contribute your experience and expertise, please write as little or as much as what you wish about what you would like people to do (or would have liked them to do at different points in your illness) via email at: lizahturp@hotmail.co.uk.

Please include your name, age and severity of illness if you wish to.

Some of the areas the book will cover are: physical symptoms; emotional effects; social; financial; work; domestic; family; community; mobility; leisure; other medical conditions; lifestyle; relationships; treatment / management; self-help; sleep problems; pacing; nutrition; relaxation.
 
Thanking you in anticipation,
Elizabeth Turp.
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