For people on the road to recovery from CFS/ME

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View Article  Recovery story - chakra healing
Aged 47, husband with M.E. since 1993, self with M.E. since 1995, great jubilation today. Attended a talk on homoeopathy last night and a friend said of me, "She has M.E." and I suddenly realised that this was no longer true as far as mindset was concerned and was obliged to tell her this morning that I AM RECOVERING FROM M.E..

This is thanks to my Barbara Brennan chakra healer , who wrote an article on chakra healing of cancer in a local freebie alternative health magazine, the Green Handbook http://www.greenhandbook.co.uk/ (just acquired a website) - I picked it up when I was diagnosed with breast cancer 3 years ago. So I told the NHS to back off (the Cumberland Infirmary didn't care about the M.E., all they could see was the cancer) and have been cancer-free for two and a half years thanks to him
. At our first meeting I told him that the cancer was NOT my main problem and he agreed. He also told me that he could SEE the M.E. , as mucus in my chakras.
Actually having somebody say that they could SEE the M.E. was very healing.
 
He calls it process work. Sometimes it's hands-on healing and some of it's in-depth counselling and that doesn't describe it by all means but that's as much as I feel able or willing to say about it.
 
This is the Healer's website - www.tjitzedejong.com
View Article  Helpful supplements

The Pro health newsletter  http://www.immunesupport.com/ recently had a question of what has helped you, here's a copy of my posting on their forum, not sure which topic it would go under,

The sinatra protocol made a big difference to my energy levels -

L Carnitine + Alpha Lipoic Acid
http://healthymarketing.co.uk/acatalog/Woods_Mature_Lifestyle.html
Co enzyme Q10 http://healthymarketing.co.uk/acatalog/Woods_Special_Supplements.html
D Ribose http://www.good4you.co.uk/store.asp?catId=13
Magnesium http://healthymarketing.co.uk/acatalog/Woods_Vitamins_Minerals.html
Vit B3 http://www.drmyhill.co.uk/article.cfm?id=373

Fats - Lecithin and Vit B 15, also Evening Primrose oil or a Fish oil, or a blended oil mix. Your cell membranes are oil based, your body needs fats and oils.
http://healthymarketing.co.uk/acatalog/Woods_Special_Supplements.html
http://www.gandginfo.com/en/shop/product_info.php?cPath=10&products_id=28

Adrenal Support - Siberian Ginseng or Rhodiola both help combat fatigue. http://healthymarketing.co.uk/acatalog/Woods_Herbal_Products.html#aW680

Strong time release B vitamin, again helps with fatigue and relaxation. I use the Holland and Barrett one

Chlorella, 6 tablets taken at night helps your body's natural de tox. Absorbs loads of rubbish. Take extra water when using.
Holland and Barrett or Higher Nature

Juicing. I bought a Matstone / single auger juicer and have about a liter of carrot and apple juice each day. Single gear / auger juicers are much better than the centrifugal juicers you get on the hight street, expect to pay about £100 - 150 for one though. Juice is much easier to digest than all that raw fruit.
http://www.google.co.uk/search?hl=en&q=matstone+juicer&btnG=Google+Search&meta=cr%3DcountryUK%7CcountryGB

Extra fluid. Filtered water, fruit juice, herbal teas all help.

EFT / Emotional Freedom Technique
www.emofree.com
This technique is amazing, initially my rational mind couldn't understand it, but I tried it out on a number of day to day and then more deeper issues and found it helpful. Free to learn and you get helpful email updates. Also Carol Look and Dr Carrington's adaptions are easy to use.
http://www.emofree.com/downloadeftmanual.asp

Laughter, funny films or tv series are cheap and easy to get on dvd, Friends, Frazier, Jackass, whatever makes you laugh : )

Powerful daylight desk lamp, helps me concentrate especially in the winter.
http://www.argos.co.uk/webapp/wcs/stores/servlet/Search?storeId=10001&catalogId=10001&langId=-1&searchTerms=4310837&go.x=18&go.y=18
http://stores.ebay.co.uk/UKRMART_Daylight-Bulbs_Packs-of-four_W0QQcolZ4QQdirZ1QQfsubZ2879623QQftidZ1QQtZkm

Relaxation tapes, I use the ones by Gill Edwards from www.livingmagically.co.uk , but you need to find ones with a voice that you get along with.

Religeous / Spiritual beliefs. I practise Soka Gakkai Buddhism as I find the chanting useful, but whatever your denomination, a broader dimention to life can help.

Sauna / Steamroom, together with drinking a lot of water this is like a mini detox, only go when I've got the energy though.

Increased water intake, either filtered water, fruit juices, herbal teas, or just a mug of warm water. Even slight dehydration makes symptoms worse.

hope some of these things are helpful.

PS try out this amazing brain massage,http://www.thestar.com/NASApp/cs/ContentServer?pagename=thestar/Layout/Article_Type1&call_pageid=971358637177&c=Article&cid=1142549412026
http://www.neilslade.com/Papers/viewzone/amygdala.html

its wonderful

View Article  What one thing above everything has most helped in your recovery?

I know that M.E. varies from person to person, so what I would like to know is; What one thing above everything has most helped in your recovery?

I know that this is a boring question, but it is the best thst I can think of at the moment.

My number one is PACING.
Thanks alot

View Article  Expert Patient Programme

Tip from a Wellie:

"I would advise anyone with mild to mid ME (or any of the variants thereof) to look at the Expert Patient Programme as their first step to moving from patient to person. It’s not for everyone and courses can vary in quality but they are a good starting point."

Details can be found at:  http://www.expertpatients.nhs.uk/course_details.shtml

Does anyone have any further experience around the Expert Patient Programme, or similar programmes which they've found useful?

 

View Article  Becoming my own expert helped me get back to work

Recovery Story in Interaction June 06

This morning I put on my high-heeled boots and went to work. Just typing that makes me realise quite how far I’ve come. It is of course quite something to have a job.But high-heeled boots? Hallelujah! They’re my first pair of proper high heels in 9 years.

At a guess I’m now around 80-90% well. I’m still a person with M.E. and fibromyalgia* and I suspect the illness may be a friend for life. But with every year that passes I win back a little more function, energy and stamina and my brain works more clearly, bringing me a bit more of the normal stuff that well people take for granted.

.... continued in attached word document

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